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Diet Change Leads to Improvement for Autistic Child

COLUMBIA, SC (WIS) – If it seems you are hearing about more children being diagnosed with autism, you’re right.

The South Carolina Autism Society says one in every 150 people have the disability. That’s about 28,000 people in our state.

There’s an autism walk this weekend as several families take action to deal with it. For some it means taking an alternative action.

To watch Harry Weaver color with his grandmother, you’d assume he’s like any other three-year-old. That was not the case a year ago.

“You could call his name and he wouldn’t respond to his own name.  You could go clap your hands behind his head and he would act like nothing happened.  Somebody could walk up and say “boo,” and he would go on about his business just doing what he was doing,” says Julie Weaver.

Harry was diagnosed as being autistic. Autism is a developmental disability that interferes with reasoning, social interaction and communication skills.

“So, kids with autism have difficulty functioning socially, difficulty doing what you and I do naturally every day, getting along, relating to other people, difficulty communicating, having conversations, having those non-verbal communications and they have behaviors that may seem different or odd to other people,” says behavioral therapist Elizabeth Wilkinson, who coordinates an autism treatment network for the USC School of Medicine.

She says early intervention is key. And there are recognized therapies that help a child recover, therapies Julie tried.

“He was doing the traditional route and it wasn’t working. It wasn’t working. I had to do something else. I was losing more of him every day,” says Weaver.

So Julie radically changed Harry’s diet. She took out foods that contained gluten, a wheat protein from flour, and casein, the milk protein in cow’s milk.

She said she saw an immediate difference, describing it as a fog being lifted from Harry’s eyes.

“He entered our world. He started having meaningful speech. He would point his finger to show us what he wanted now. And when the therapist would come to the house to do therapy, he would cooperate,” says Weaver.

Julie says the diet takes a ton of work but there are numerous options. She laid out several of them in her husband’s chiropractic office. Together, they educate other parents.

They even use a hyperbaric chamber that uses the amount of pressure you’d feel at the bottom of an eight-foot pool. They believe it helps Harry sleep better and calms his aggression.

When inside, Harry plays games with mommy.

“I don’t discourage them from trying anything that they think is going to help their child, I think they have every right to try whatever they think is going to help the child as long as it doesn’t stand in the way of helping their youngster progress,” says Wilkinson.

Wilkinson says the chamber and radical diet are not recognized forms of treatment.

The Weavers say the alternative treatments are what saved their son.

The Weavers will be one of the families participating in this Saturday’s “Strides for Autism.”

Join them in Finlay Park in Columbia at 8am. You can register at the South Carolina Autism Society’s website.

VIEW VIDEO REPORT ACCOMPANYING THIS STORY

Reported by Dawndy Mercer Plank, Posted by Logan Smith

ORIGINAL STORY

Can Diet Really Improve the Symptoms of Autism? Read This Family’s Story and Decide

From: Daily Mail Online
By Angela Epstein, Last updated at 1:34 AM on 10th March 2009

Daily Mail
Simone Sewell still shudders at the memory of the moment she was told her two-year-old daughter, Sienna, was autistic.

She and her husband, Geoff, sat in shock as the paediatrician spelt out the bleak future that awaited their first-born.

‘The doctor said Sienna would never fall in love, marry or have an independent life,’ recalls Simone. ‘With no hope of a cure, we were more or less told to live with it.’

Simone Lanham

Hope: Simone Lanham believes her five-year-old daughter Sienna is on the way to being cured of autism

Yet three years on and this grim future seems unlikely, given the great improvements in Sienna’s behaviour. Indeed, her parents believe Sienna, now five, is on her way to being cured.

It’s a staggering claim, not least because mainstream medicine insists autism – which affects nearly 600,000 UK children and adults – is a life-long condition.

Yet Simone offers countless anecdotes as proof of her daughter’s improvement. ‘For instance, like many autistic children, Sienna always hated noise, people and busy places,’ says Simone.

‘She would scream, have a tantrum or cry because she was so overwhelmed. Now I can go shopping to a supermarket with Sienna holding one hand, and her sister Olivia, who is three, holding my other without worrying whether Sienna will stay by my side or create a scene. This is how I know she is getting better.’

This progress has been achieved at a cost – the couple have invested £100,000 in behavioural and dietary therapies, and Geoff, who was in the pop opera group Amici Forever, has given up his singing career to help with Sienna.

She would line up her toys obsessively

It is not known what causes autism but it affects a child’s ability to communicate and relate to others. They are often withdrawn, mute, unable to make eye contact and prone to disturbed sleep and tantrums. Many never take part in mainstream education and some require full-time care.

Milder cases may struggle with communication, but be able to live a fairly independent-life. But even then, as the paediatrician told the Sewells, it was unlikely Sienna would have a truly self-sufficient future.

‘We were devastated,’ recalls Simone, 35. ‘Afterwards we just walked round a local park, bawling our eyes out, hardly able to speak. But I refused to write off my daughter. I felt there had to be something that would help her.’

Simone and Geoff, also 35, who live in Hampstead, North London, didn’t realise Sienna had a problem until a few months before her diagnosis. It’s only with hindsight they realised the ‘red flags’ were there.

For the first two years of Sienna’s life, she travelled with her parents as her father toured with Amici Forever.

‘She had tantrums, slept badly and would line up her toys obsessively,’ recalls Simone, ‘but I just thought she had a strong personality. As she started to talk, she didn’t use conversational language, but there were no other children around to compare her with so we didn’t realise anything was wrong.

‘But her behaviour deteriorated as she got older,’ Simone says. ‘Eventually, she would be awake for seven hours a night. She was very much in her own world, and wasn’t interested in other people.

‘Autism was the last thing on our minds. We were so naive. In fact it was only at her assessment that we realised something was wrong. The speech therapist said at her age she should have had about 50 words in her vocabulary. Sienna didn’t have anything like that.’

I refused to write off my daughter

An agonising six months of tests assessments followed before Sienna was formally diagnosed.

After the shock Simone spent hours searching the internet, desperate for possible leads to a cure, overwhelmed at the vast amount of opinion and advice.

Then fate intervened. Geoff decided to abandon his singing career so the family could have a more stable home life (they now run an entertainment agency). A farewell concert in his native New Zealand was arranged.

Hearing of their situation, Dr Debbie Fewtrell approached the couple. She believes autism is linked to an inflamed gut.

While the cause of this inflammation is not clear, it means autistic children can’t digest proteins found in foods such as bread and milk. As a result, tiny proteins leak into the bloodstream and act like opiates which turn off part of the brain and also cause or aggravate the symptoms of autism.

Blood and urine tests suggested Sienna’s gut was indeed inflamed, and she was placed on a gluten and dairy-free diet. ‘Within a couple of days, Sienna said “water” and pointed to the tap – something she’d never done before,’ says her mother. Though they cannot prove this was linked to a change in diet, it seemed more than coincidence.

The next step was a ‘specific carbohydrate diet’ – a regime avoiding complex carbohydrates such as bread, cereal and pasta to rid the gut of harmful bacteria and reduce inflammation.

Her behaviour improved within days of the special diet

Some may suggest the family’s peripatetic lifestyle was largely to blame for Sienna’s behaviour, but the Sewells say the diet is what has transformed her. ‘It made the most amazing difference,’ says Simone. ‘After about a month Sienna started to do imaginative play – something I’d never dreamt she could do.

‘Normally she would just line up her dolls but I came in one day to find her sitting with them on a little table and telling them: “We’re going on holiday to Crete.” I was flabbergasted. It was then I dared to believe we were actually getting somewhere and making progress.’

The Sewells also started giving her supplements such as zinc, selenium and Vitamin B6 injections – which some studies claim improves the behaviour of autistic children – and ‘detoxified’ their home to limit Sienna’s exposure to materials such as household chemicals that could be aggravating her condition.

Dr Fewtrell also recommended applied behavioural analysis (ABA). This involves teaching linguistic, cognitive, social and selfhelp skills to autistic children by breaking these down into small, repetitive tasks.

For example, if a child was attempting to learn to match pictures up, the therapist would initially direct the child to match the pictures by putting their hand over the child’s and directing them. Once the child has done this several times, the therapist may tap their elbow to prompt them instead. Eventually, the child should do it without prompting.

As well as only being available privately, it is also time-consuming. Simone found a practitioner in London, and Sienna, then three, began working with her for 12 hours a week. This has gradually increased to 33.

The Sewells believe they will confound the paediatrician’s bleak prognosis. ‘Sienna gave us cause to hope,’ says Simone. ‘Within a few days of starting the ABA therapy, she called out “Mummy” to me, just as a normal child would do as a sign of affection.

‘Her speech began to improve and she began to use connectives such as “but” in a sentence. Her reading and writing skills have developed rapidly in the past year.’

Sienna is at mainstream school, with her ABA helper in tow for part of the week. She is, says her mother, popular with her peer group and does ‘imitation’ play with her sister – who is not autistic – copying everything Olivia does.

Without evidence to prove the link between diet and autism, the medical establishment remains sceptical and maintains autism cannot be cured, only positively managed at best.

‘There is evidence early intervention can help a child cope with their condition,’ says Caroline Hattersley, of the National Autistic Society. She says while the NAS understands parents’
; need to find something that will help, there are a lot of interventions, including ABA, ‘which may or may not help’.

She adds: ‘The bottom line is that, unfortunately, there is still no cure for autism.’

The Sewells are far more hopeful. ‘The future is so exciting and I visualise Sienna well, graduating, sitting round the family table telling us her news,’ says Simone.

‘By healing Sienna’s body from within and teaching her how to connect, I’m sure we can beat it.’

*  National Autistic Society Helpline: 0845 070 4004.

Biomedical Intervention and Diet Recovery Story

A sincere thanks to Generation Rescue for helping so many and working to show parents and physicians that autism is treatable. Kids are recovering. I find this story that has been shared by a parent to be uplifting, educational and empowering. To those that doubt there is hope, I challenge you to listen to other parents at Generation Rescue and TACA.  I recently had the opportunity to share autism diet information with Generation Rescue parents—they have great resources for parents researching biomedical intervention.

In wellness, Julie.

RecoveryButton480

From Generation Rescue…

Recovery Story contributed by Mom of Quinn, age 4:

Two and a half years ago I read the testimonials on this website and wept. I still do when I need a good cry. Those tears were an overflowing of my hope for my son, Quinn, and all children and families with autism. The stories confirmed for me what I knew in my heart: my son will recover from autism.
We’re almost there. Here’s a bit of our story. I hope that it will help you.

I had a normal pregnancy and delivery. I had a flu shot in the second trimester and a high fever in the third, but nothing extraordinary. Quinn was mildly jaundiced at birth and a big baby (10 pounds, and no, it wasn’t a c-section). I nursed him for 3 months, but couldn’t keep it up once I went back to work. His development was all pretty normal for the first year, and he started stimming around 12-15 months, after his MMR.

Quinn was diagnosed right after his second birthday. At his 18 month check up he was not speaking at all, and his pediatrician asked me a lot about it. I was concerned, but convinced that it was because he was getting so much Spanish. Children who are exposed to bilingual environments often have slight speech delays, but when they speak they are able to speak both languages fluently. What I didn’t realize is that he didn’t have any receptive language either. He couldn’t respond to “touch your tummy!” or even really play peek-a-boo. Anyway, at 18 months we left the doctor’s office and I was convinced that we should wait and see — if he wasn’t talking by his birthday, we’d have him assessed for a speech delay. I left with no information about autism or developmental delays at all. He could have been diagnosed at 18 months if only I had known more about autism.

But I didn’t. So he continued to fade away from us. He was sensitive and covered his ears a lot, he retreated into self-stimulatory behavior whenever he could, and he was lost in his own world. It’s so subtle when you don’t know what to look for, isn’t it? A few days before his second birthday, he was still not talking. No words at all. No eye contact at all. No imitation at all. But he was an easy baby, and had very few tantrums. He could entertain himself (i.e. stim on spinning anything and everything) for hours. He was an eloper, and he was oblivious to his peers, but he was generally happy. He was a gentle, sweet baby, and we didn’t realize how lost he was.

I went to the bookstore to look into speech delays, and on a whim, I picked up a book about autism. After reading the first few pages, I knew. I bypassed the doctor and went right to the State Department of Education and referred him myself for the evaluation for autism. Within three long months, he was diagnosed and early intervention services began.

Food. I have learned that food is medicine or food is poison, and there’s not much in between. He lived on cereal, wheat toast, fruit and milk. I remember being so excited when he finally showed some interest in pizza because he was broadening his food options. He could drink over 50 ounces of milk a day! As we researched autism, we found some websites that claimed that wheat and dairy could be contributing to the disorder. I vividly recall the first conversation I had with my husband about this. I was so shocked by the idea that milk could be bad for my son. So I dug deep on the internet and decided that, though I was skeptical, it was certainly worth exploring.

(more…)

Diet May Help Autism

From YumaSun.com
October 26, 2008 – 6:27PM
BY STEPHANIE SANCHEZ, SUN STAFF WRITER

Gwen Conner gently held her son’s face between her hands in hopes that he would make eye contact with her.YumaSun

His eyes avoided looking at her until she could almost could no longer see his pupils, she said.

She remembers he would rarely cry or make any baby sounds. Whenever she would come by him, he didn’t acknowledge her. Conner noticed that there was a problem with bonding. Conner’s son was diagnosed with autism when he was 2-1/2 years old.

Children with autistic disorder can display a wide range of deficiencies in moderate to severe communication skills, social skills and behavioral problems, according to “The Autism Sourcebook: Everything You Need to Know About Diagnosis, Treatment, Coping, and Healing” by Karen Siff Exkorn.

The three most common early symptoms of autistic disorder are a lack of eye contact, a lack of pointing and a lack of responding.

After doing extensive research, Conner learned about how a casein/gluten-free diet can help improve symptoms in autistic children.

That same day, she said, she emptied out the fridge and restocked it with gluten-free and casein-free (GFCF) foods “because it is harmless and because it is worth a shot.”

“I say that one never knows whatever this diet can do to help, maybe it can take you one step closer to recovery. I tried it because I know there is no way it was going to hurt him at all.”

The casein/gluten-free diet eliminates all foods that contain gluten, wheat, oats, barley and rye. All dairy products, which are a source of casein, are banned.

A week later, she noticed immediate results. “His spinning slowed down, he wasn’t as hyper … now he’s petting the cat and the dog. Before, he didn’t care if I was there and now he kisses and hugs.”

Autistic children tend to have food allergies and overactive immune systems, said Dr. Cindy Schneider, who treats individuals with autism and other developmental disorders at the Center for Autism and Research Education in Phoenix.

Their immune system is automatically making antibodies against their brain tissue, so anything that triggers an immune response – including a food allergy – is going to make the situation worse, Schneider said.

“The biggest offenders for autistic children are gluten and casein because they tend to have difficulty digesting the foods.”

For example, the amino acids in a warm glass of milk can help induce sleep in some individuals. But autistic children, whose digestive tracts generally don’t break it down very well, can experience an exaggerated morphine effect.

“So whenever your brain is inflamed, you’re not going to have normal behavior or normal concentration, learning or anything else,” Schneider said. “They can become hyperactive, irritable, their self-stimulatory behavior goes up … like meaningless behaviors like hand-flapping, rocking and saying the same thing over and over again … the autistic behaviors escalate.”

Alma Short’s son was diagnosed with autism at the age of 3. He’s now 4 years old and has been on the diet for about a year.

“It’s been one of the hardest things to do … to keep up with it,” Short said. “But I have seen great improvement with that diet. I saw little changes right away and then within months, my son’s social interaction increased.”

Short said she was a skeptical about trying the diet because she wasn’t sure of how her son would respond to the meals, but therapy and the diet helped him on the right track.

“I would never remove my kid from the diet. It’s amazing to see that my kid can actually recognize everybody. And he calls me mom … when it was just a blank stare before.”

Schneider, who also has two sons with autism, advises that any mother who wants to place her autistic child on the diet first seek the guidance of a physician or a nutritionist because the child may be a picky eater. That will ensure the child receives the needed nutrients.

Michelle Vielbig said her 5-year-old son has been on the casein/gluten-free diet for almost three years now. “The diet changed his life. It really did.”

It was hard work for her son to start the diet, she said, because he was used to drinking almost half a gallon of milk a day. “He would stand in front of the refrigerator for hours and scream. It wasn’t easy.” Vielbig said.

But within two weeks, her son began speaking for the first time – although “it was pretty much not functional language, it was just language. After we started the diet, the first thing I noticed was he actually realized that people came in and out of the room…”

Conner, who is director of the Yuma Autism Support Group, says this natural approach is good start for mothers who are hesitant about placing their child on trial medications for autism.

“I won’t go back. He’s going to be on this diet for the rest of this life and he’ll continue the diet when it is his turn,” Conner said.

For learn more about GFCF meal recipes, e-mail Conner at autismyuma@yahoo.com

—-
Stephanie Sanchez can be reached at ssanchez@yumasun.com or 539-6847.

Changes to Diet Help with Autism Symptoms

By Dr. Thomas Coffman

Why do some cases of autism spectrum disorders have a favorable response to eliminating gluten and casein proteins? Well, first let’s identify the offenders, then we’ll look at what happens to them in the body and then the brain.

Gluten is a protein that is found in wheat, oats, rye and barley. Including malt, soy sauce, flavorings and artificial colors. Casein is a protein found in dairy products. It can also be found in non-milk products such as soy cheese, hot dogs in the form of caseinate.

Now, here is the theory. When eliminated from the diet, the body is not burdened with products it can not properly digest, and the body turns these substances into byproducts that mimic opiates. The child’s behavior, responses to their environment, and perceptions become skewed.

It should be noted that not all children have a dramatic improvement in speech or behavior, but numerous families have noted that out of all the interventions they have tried, implementing a gluten/casein diet modification has produced immediate results. Then all you have to do is continue with this process, by implementing additional therapies and nutritional interventions, including environmental detoxification.

There are specific medical tests that can be ordered by your pediatrician that can assist in determining if your child has a sensitivity or allergy to gluten/casein products. It is important to specify that you intend on incorporating a gluten/casein diet into your child’s treatment routine. If the tests come back with results indicating no allergy to the above mentioned, then it will save you a huge headache in introducing this specific diet. I’ve had several young mothers call after speaking to our dietician or nutritionist, frustrated with the difficulty of changing shopping behaviors. Though most stores now have sections in the nutrition departments that have identified gluten/casein-free products, including providing parents with a list of available products. Yet, many stores still have no idea what you are talking about.

A much simpler way for people that do not carry enough health insurance, or if they will not cover various tests, is to systematically remove one food item at a time, and note any changes in behavior or physical symptoms over a one to two week period. Some parents remove all GFCF products, and introduce one at a time. This method tends to be quicker, thus providing an immediate return on your interventions.

Remember, food today is genetically modified and is not the same that our ancestors evolved with over the last five to 10 generations. To get an idea of what I’m talking about, anyone who has changed their pets’ food abruptly knows what happens. Anyway, in an effort to increase harvest and size of produce, it also has its negative side. Something that I teach in my “Managing the Spectrum” lectures, is we need to take note of the Amish, and there lack of autistic disorders in their communities. The only case found so far was a child that was recently adopted from an American family returning from China with a young child. A little history first, when they visited China, the child was fine, or no remarkable diseases or disorders. But, once the child was “selected for adoption,” the child went through all her normal routine immigration medical criteria. Which, unless they are adopted, do not receive the same health care interventions.

It is also interesting to note that another group is gaining attention in Minnesota. It was brought to my attention a few weeks ago by another journalist that I’d be interested in a story published by the Associated Press. The article noted that based on population, the Somali children consisted of 6 percent of the children in the Minneapolis school system, but were counting for 25 percent of the children enrolled in the early childhood autism programs. It’s of interest to note that while awaiting immigration to countries like the United States and Sweden some children receive the same vaccinations three or four times due to inadequate record keeping.

A few years ago, one of my patients was instrumental in co-authoring legislation in Iowa banning thimerosal in childhood vaccines. The state of California followed suit. Now, one has to ask the question, where do these vaccines go, once they have been deemed unsafe for child immunizations?

It has been suspected that these vaccines have found their way to aid agencies in Africa and sold to China. When I first heard that, I thought to myself, they’re going to be furious. Some countries do not vaccinate until the infant brain has adequately developed, i.e. 3 years of age. But it is common practice to fully immunize prior to adoption and immigration into the United States and other countries.

Several members of our staff have crossed over the aisle from conventional medicine and have established theories and protocols consistent with the conservative holistic medicinal communities. Several of our nurses, physician assistants and physicians have established a vaccinate wisely protocol. Know what you are getting, ask why you are getting it and spread them out.

In some cases, if you have a child that has developed a pervasive developmental disorder (PDD), you may want to consider exploring a medical waiver if you suspect vaccine injury, linked to a predisposed genetic vulnerability, when getting routine childhood vaccinations for the rest of the house.

Adults tolerate vaccinations much better than the highly vulnerable infant nervous system. Think of the Amish the next time you vaccinate. Remember, their food is different, the clothing textiles are different, and the containers they store their food in are different. The big one is, they have zero documented cases of PDD or autism.

I would be interested to see how many wives of physicians would be willing to give birth in a foreign country, do some aide work for two years, then return to the States, knowing they will have to go through the same routine. Just a thought.

Dr. Thomas Coffman is the medical director of the British Clinic Health System, host of Integrative Medicine Radio, and author of four books on homeopathic psychology, ancient Egyptian medicine, and managing the spectrum. Coffman lectures for the British Institute of Homeopathy in the United States and England.

Thomas Coffman, House Call



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